Fortenberry’s ALS Bill Gets Biden’s Signature | Regional government
Representative Jeff Fortenberry on Thursday called President Joe Biden’s move to enact legislation he sponsored to transform the research and treatment of ALS patients a “miraculous moment.”
Biden signed the bill in a ceremony at the White House.
“It has been a long and difficult road up to this miraculous moment,” said Republican congressman Lincoln.
“With this transformative public policy, we can break through faster for those who have suffered so much.”
The law will allocate $ 100 million a year between 2022 and 2026 to research Lou Gehrig’s disease, an incurable neurodegenerative disease also known as amyotrophic lateral sclerosis, and similar diseases. It will also create grant programs and provide early access to promising treatments for patients who are not accepted into clinical trials.
Fortenberry said the ACT for ALS Act “represents a monumental change for people with neurodegenerative diseases” by transforming disease research and regulation while creating “a new avenue for promising new treatments.”
“It breeds hope,” Fortenberry said.
“For decades, patients with ALS have undergone tests and trials, therapies and placebos, according to the rules of the current healthcare policy framework,” he said, with “uneven, even questionable” progress, as well as serious obstacles to new treatments.